1. Medical
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- Provide accurate age-appropriate information and encourage the children to ask questions.
- Having open and honest communication with your child.
- Prepare your child for medical procedures.
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2. Emotional
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- Help your child deal with feelings about the diagnosis.
- Reassure that their feelings are normal and valid.
- Give children the opportunity to voice out their feelings.
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3. Social
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- Educate children regarding their condition.
- Include siblings in discussions.
- Identify role models for children.
- Connect with trained peer support volunteers.
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4. Family Life
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- Help your child lead as normal life as possible.
- Having fun and maintaining family routines.
- Treat children with PI as you would any other child.
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5. Addressing Your Needs
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- Educate yourself about your child’s diagnosis.
- Take good care of yourself.
- Know when to seek help.
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6. Coordinating Your Child’s Healthcare
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- Monitoring your child’s symptoms
- Keeping accurate medical records of your child
- List of your children’s current medications
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