Persatuan Pesakit Imunodefisiensi Primer Malaysia (MYPOPI) has more than 100 members, patients & families affected by Primary Immunodeficiency disease (PID); is a non-governmental and non-profit organization founded by patients that aims to spread awareness about PID, ensure opportunities for early diagnosis, and optimal healthcare for all PID patients in Malaysia. This association was established in August 2014. MyPOPI is also a permanent member of the International Patient Organization for Primary Immunodeficiencies (IPOPI).
The aim of the organization is to provide support and as a representative to those affected with Primary Immunodeficiency (PID) in Malaysia, working with Professional Health Officer and relevant organizations to improve the quality of life, care, and health treatment of PID patients.
The Birth of MYPOPI: Beginning of a Hopeful Journey
The first Malaysia PID Patients’ MeHieting & Workshop was held in collaboration with Malaysian Society of Allergy Immunology (MSAI) and IPOPI during the 6th NACLIS (National Clinical Immunology Symposium) International Conference in Kuala Lumpur.
The MYPOPI interim committee was formed and by February it became an associate member of IPOPI. MYPOPI is a patient-driven, physician-supported organization, committed towards increasing awareness of PID, while improving conditions and providing support for patients, not just in Malaysia but regionally.
Since its inception, MYPOPI has embarked on its objective within the community through medical conferences, road shows and meetings with medical policy makers and even the Health Minister. MyPOPI had bridged out to its neighbouring country, helping with their efforts towards similar objectives. MYPOPI and MSAI had also jointly celebrated the World Primary Immunodeficiency Week with the mission to create awareness of PID through involvements of the mass media.