{"id":2118,"date":"2024-02-29T05:47:59","date_gmt":"2024-02-29T05:47:59","guid":{"rendered":"https:\/\/mypopi.org\/?p=2118"},"modified":"2024-04-16T05:49:30","modified_gmt":"2024-04-16T05:49:30","slug":"world-rare-disease-day-2024","status":"publish","type":"post","link":"https:\/\/mypopi.org\/cn\/2024\/02\/29\/world-rare-disease-day-2024\/","title":{"rendered":"World Rare Disease Day 2024"},"content":{"rendered":"<p><strong>Congratulations to UKM for organising their first World Rare Diseases Day celebration on 29 February 2024!<\/strong><\/p>\n<p>The event was organised by the Department of Paediatrics, Faculty of Medicine together with Children&#8217;s Specialist Hospital (HPKK) and Hospital Canselor Tuanku Muhriz (HCTM) started with a warm welcome by the programme chairman, Professor Dr Cheah Fook Choe.<\/p>\n<p>Assisted by a teenager living with a rare disease, Muhammad Afiff Eshan bin Mohammad Fadzly from the Malaysian Apert Syndrome Association, the historic event was officiated by Prof. Dato&#8217; Dr Hanafiah Harunarashid, Pro Vice-Chancellor (Kuala Lumpur Campus) UKM.<\/p>\n<p>MYPOPI and several other rare disease organisations such as DEBRA Malaysia, MND Malaysia, Genetic Counseling Society Malaysia, Malaysian Prader-Willi Syndrome Association and Hemophilia Society Malaysia participated in this historic event by launching a week-long public awareness campaign at HPKK.<\/p>","protected":false},"excerpt":{"rendered":"<p>Congratulations to UKM for organising their first World Rare Diseases Day celebration on 29 February 2024! The event was organised by the Department of Paediatrics, Faculty of Medicine together with&#8230;<\/p>","protected":false},"author":156,"featured_media":2156,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[8],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.6 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>World Rare Disease Day 2024 - MYPOPI<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/mypopi.org\/cn\/2024\/02\/29\/world-rare-disease-day-2024\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"World Rare Disease Day 2024 - MYPOPI\" \/>\n<meta property=\"og:description\" content=\"Congratulations to UKM for organising their first World Rare Diseases Day celebration on 29 February 2024! 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